Nuala’s Story: One Eye, Endless Light
In August 2023, Megan noticed something unusual about her 9-month-old daughter, Nuala. Her left eye was bloodshot.
At first, it seemed like nothing serious. Perhaps she had rubbed it too hard, or maybe she had burst a small vessel while crying. Babies are delicate, and small bruises or redness often mean very little. Still, Megan and her husband kept a watchful eye on it.
But the redness didn’t fade. Days passed, and instead of improving, it seemed to worsen. Concerned, they took Nuala to the GP. The doctor reassured them that it was likely a
subconjunctival hemorrhage — a harmless condition that typically clears within 7 to 10 days. Relieved, they returned home, hoping time would heal their baby’s eye.
A Mother’s Instinct
A few days later, however, Megan and her husband noticed something alarming. Nuala’s eye wasn’t just red anymore — it was beginning to change shape and protrude slightly.
Alarm bells rang in Megan’s mind. They returned to the GP, who advised them to go straight to A&E. At the hospital, doctors examined Nuala carefully. They agreed something seemed unusual but, after discussions, discharged her with a
routine referral to ophthalmology.
For many parents, this might have been a moment of reassurance. But Megan couldn’t shake the feeling in her gut. As both a mother and a nurse, she knew something wasn’t right.
“I knew in my heart something was wrong,” she later shared. “So I pushed for an earlier appointment.”
That persistence — that fierce maternal instinct — may have saved Nuala’s life.
The Urgent Tests
Just two days later, Megan managed to secure an appointment with a specialist. During the exam, the doctor dilated Nuala’s pupils and ordered scans. Several other doctors were called in to take a look. An ultrasound was performed. Then, an MRI.
“As a nurse, I understood how serious it was,” Megan recalled, “when radiology squeezed in an urgent MRI slot within days.”
The MRI confirmed what no parent ever wants to hear: there was a tumour.
Nuala was admitted quickly, and a biopsy was scheduled. Initial results suggested rhabdomyosarcoma, a rare soft tissue cancer, but further tests cast doubt. For eight agonising weeks, the family waited while specialists across different centres examined samples, tested markers, and debated what this tumour could be.
Finally, the diagnosis was confirmed: alveolar soft part sarcoma.
It was not only rare, but also chemo-resistant. Standard treatment options — the ones most families cling to — would not work.
A Heartbreaking Decision
The only path forward was a radical surgery known as exenteration.
This meant removing Nuala’s entire left eye and the surrounding muscles.
Megan and her husband were devastated. Their daughter wasn’t even a year old. How could they make a decision that would permanently change her face, her vision, her future? And yet, this was her only chance of survival.
“It was the hardest decision we’ve ever made,” Megan reflected. “But we trusted the experts to do what was best for Nuala.”
The Surgery
On December 11th, 2023, just days after celebrating her first birthday, Nuala went into surgery.
The operation was long and complex. For her parents, the hours waiting outside the theatre were unbearable. They clung to each other, replaying memories of their baby’s first steps, first smiles, first birthday cake — and praying for many more milestones to come.
When the surgeons emerged with the news that the procedure had gone well, the family felt both heartbreak and relief. Nuala’s cancer had been removed, but the cost was monumental.
The Road to Recovery
By January 2024, Nuala was declared cancer-free.
Her recovery was slow and tender. She had to adjust not only physically but also emotionally. The family faced new routines: check-ups every three months, fittings for a prosthetic eye, and ongoing monitoring to ensure the tumour would not return.
The prosthetic was more than cosmetic. It was vital to ensure her skull and facial bones developed properly as she grew.
Through it all, Nuala showed remarkable resilience.
Life Today
Now, Nuala is thriving. She goes to nursery, giggles as she plays with her big brother Jack, and embraces life with the feisty determination of a child who has already conquered so much.
Megan shares honestly about the challenges that remain.
“It’s been an emotional journey,” she admits. “I’ve started psychological support for PTSD, and Jack has his own challenges too.”
Daily life still carries reminders of what they’ve been through. Questions from strangers. Stares when out in public. The lingering ache of loss for what Nuala has endured.
But alongside the struggles is gratitude. Gratitude that she is here, that she is alive, that she is smiling.
“Our story looks different,” Megan says, “but we take it one day at a time.”
The Family’s Strength
The journey has not only tested Nuala’s body, but her family’s spirit. Jack, her older brother, has had to adapt to big changes at home. Megan and her husband have had to balance hospital life with parenting, and their own grief with the need to stay strong.
Support from charities like Lennox Children’s Cancer Fund has been crucial. They provide care, financial help, and community for families like Nuala’s who face the unimaginable.
Why We Share Nuala’s Story
September is Childhood Cancer Awareness Month, symbolised by the colour gold. Nuala’s story is a powerful reminder of why awareness matters.
Childhood cancer doesn’t only affect the child — it affects the entire family. It demands difficult decisions, life-altering sacrifices, and unimaginable courage. And yet, within these stories, there is hope, resilience, and love.
Nuala’s journey shows the importance of early intervention, of listening to parental instincts, of pushing for answers. It highlights the need for research into rare and resistant cancers like alveolar soft part sarcoma. And it demonstrates the profound strength that even the smallest children can show.
A Message of Hope
Today, Nuala is a happy, thriving little girl. Her smile lights up every room. Her spirit is fierce, playful, and determined. She may only have one eye, but she sees the world with more joy than most ever will.
Her family’s story is not easy, but it is powerful. It is a testament to love, to advocacy, and to the strength of children.
💛✨ We thank Megan for bravely sharing Nuala’s inspiring journey. By telling her story, she reminds other families that they are not alone — and that even in the darkest times, hope can shine. ✨💛
If you want to help families like Nuala’s, please consider supporting Lennox Children’s Cancer Fund. Every donation helps provide vital care, support, and moments of joy for families facing childhood cancer.
