💙 Jaś’s Heart — The Little Boy Who Defied Death Twice 💙
We cried in the oncology ward as our three-month-old son endured yet another round of chemotherapy.
Every day felt endless — an eternity of fear, prayers, and sterile hospital light.
When we finally found a bone marrow donor and thought we could breathe again, fate struck us once more.
Another diagnosis.
Another nightmare.
This time, it was his heart.
A rare, deadly defect — the kind that few doctors in the world had ever seen.
At night, we woke again and again, terrified to check if his tiny heart was still beating.
Every breath, every flutter under his ribs, felt like a borrowed miracle.
Now, after everything — the chemo, the transplant, the months of hospitals — Jaś has survived the first stage of heart treatment.
Only one last operation stands between him and a healthy, normal life.
Just one step… and yet, for us, that step is everything.
We are so close to the end of this nightmare — to the day our son can finally just
live.
But we can’t do it alone.
We need help to reach that final miracle.
When the World Fell Apart
Before Jaś came into our lives, we were just an ordinary family.
Hospitals were places we associated with new beginnings, not fear.
We knew nothing about congenital heart defects, genetic disorders, or chemotherapy schedules.
That was before we learned what real fear feels like — the kind that settles into your bones and never leaves.
During pregnancy, everything seemed fine at first.
We imagined his first steps, his laughter, his birthday candles.
But at the halfway ultrasound, everything changed.
The doctor frowned, then grew quiet.
He spent an hour examining our baby’s heart before finally looking at us and saying the words that shattered our world:
“Your son has a very serious heart defect.”
A defect so rare it occurs in just
0.5% of all heart conditions.
In Jaś’s heart, the chambers were reversed — a condition called L-TGA (levo-transposition of the great arteries).
He also had Ebstein’s anomaly, a severe valve defect, and episodes of rapid, life-threatening arrhythmia.
In the ninth month of pregnancy, we were told not to expect him to survive.
We broke completely.
If we could have, we would have given him our own hearts just to keep his beating.
And yet, against all odds, he was born — crying, breathing, living.
That sound, his first cry, was the most beautiful thing we had ever heard.
The First Battle — Cancer
For a brief moment, his heart seemed stable.
But his pale, chalk-white skin worried us.
We thought it was related to the defect.
We were wrong.
Jaś was diagnosed with
aplastic anemia — a failure of his bone marrow to produce blood cells.
A disease so rare it happens in one in a million children.
Our world collapsed again.
Chemotherapy began immediately, followed by transfusions — bag after bag of blood keeping him alive.
We watched as nurses pierced his tiny arms again and again, as tubes ran from his body, as life itself seemed to slip away from him.
We cried helplessly beside his bed.
And then, a miracle: a donor was found.
On April 21st, Jaś underwent a bone marrow transplant — his first victory against death.
The Second Battle — The Heart
After leaving oncology, the heart trouble began.
The defect worsened.
Doctors warned us that if nothing changed, only a heart transplant could save him — and hearts for babies are almost impossible to find.
We couldn’t accept that.
We began writing to hospitals around the world, sending reports, pleading for help.
Everywhere — rejection.
The defect was too rare, too complex.
No one would operate.
Except one man:
Professor Pedro J. del Nido, at Boston Children’s Hospital — one of the best pediatric cardiac surgeons in the world.
He reviewed Jaś’s files and said,
“Bring him here. There is hope.”
It was the first time in months we could breathe.
The First Operation — A Miracle in Boston
The doctors in Boston proposed a two-stage treatment plan.
The first — a banding procedure to control his circulation and prepare his heart.
The second — a full double switch surgery, which would completely correct his heart’s anatomy.
The odds of success? 98%.
But the cost… enormous.
Still, what parent could say no to saving their child’s life?
We turned to the kindness of strangers — people like you.
And you answered.
With your help, we raised the funds.
On February 25th, we flew to Boston.
On March 8th, Jaś’s surgery began.
For two long hours, we sat in silence, unable to move, unable to breathe.
And then — the words we had prayed for:
“The operation was successful.”
Jaś woke up two days later.
Within a week, he was walking through the hospital halls, laughing, tugging his suitcase behind him at the airport.
Our miracle boy.
The Final Step
Now, Jaś is preparing for his final surgery — the one that will make his heart function like any other child’s.
It will involve the full double switch, corrections of blood flow, and an ablation to stabilize his rhythm.
If needed, a pacemaker will be implanted.
If all goes well, Jaś will live without any medication.
No more tubes.
No more hospital beds.
Just life — real life.
But before that can happen, we must once again raise the funds to return to Boston this October.
The Plea
We’ve spent the last two years fighting death — and twice, our little boy has won.
He’s not even two years old, yet he’s survived more than most adults ever will.
At home, we call him our little warrior.
Every time he smiles, we find the strength to keep fighting.
But we can’t do this last step alone.
We need you again — his family of thousands who have loved him from afar.
Please, help us finish what we started.
Help us give Jaś the chance to live without pain, without fear, without machines.
We’ve seen what your kindness can do.
Now, we ask one last time — will you help us save our son’s heart?
